By Randy on Monday, January 07, 2002 - 08:53 am:

I have had SI pain for 3 yrs 4 months. Once a 2:50:00 marathoner now unable to run to the mailbox. Physical Therapy and stretching makes it worse. Chiroptactic adjustments don't last. Osteopaths have done little more than a chiropractor. Some Infrared and/or ultrasound also done. The best cure has been a SI belt stabilizer. X-Ray, CAT scan, and bone scan show nothing. Nobody will no an MRI. I don't know if the problem is in the soft tissue or ??? where else can it be? So where do I stand? I have an appointment in 2 weeks for a physiatrist. Prolo is my next alternative. Is this where I want to go? Is stabilization of the joint important before starting prolo?

By Robyn on Monday, January 07, 2002 - 10:01 am:

Hi Randy,
Everyone is unique, but I too have severe si dysfunction. I can feel my si joint moving - all the time - even in my sleep. It often(very often) gets "stuck" - leaving me with a rotated pelvis and pain that I wouldn't wish on anyone. If and when I can get it "unstuck" - I get amazing relief...but this has become more and more difficult (I'm 7 years now with this problem). All pts and physiatrists said prolo was sure to fix me. I have tried prolo with 2 different practitioners (one who is famous.. - dr. to famous dance companies). I've tried multiple rounds of injections..and have had no luck at all at relieving the pain with prolo. I must say - I think the pts and drs were baffled. My own gut instinct tells me that my SI goes out - before the "sclerosing" takes place. It takes about 6 weeks for the body to scar down...and my si won't stay still for 6 minutes. So -- I'm wondering if my si just pulls the whole prolo effort out. I have heard it's key to be properly alligned before the prolo session...we tried this too - but I'm not sure the adjustment was always acheieved. Another thing to consider is that if one has Ehlers Danlos III (or hypermobility syndrome)...the connective tissue that is is produced through the prolo may be "defective" in itself -- perhaps too stretchy to stablize that joint. Maybe this is why prolo works for some and not others. Do you think your ligaments would be classified as extremely lax?

The other big variable for me is that I have a herniated disc at L5S1 - and hypermobility of the facet joints too. One physiatrist who really thought I could be helped by the prolo - now believes the instability at the L5S1 disc is what keeps me from being able to stabilize the SI joint (with prolo, mannual therapy or pt rehab efforts). I have even considered trying to fuse the si joint surgically... but where would that leave me with the disc (as a fused si joint puts strain on the L5S1 disc). It's so hard to understand, I know. You mention the soft tissue component..this is a very important aspect as well. For me, when the si joint gets "locked"..my muscles all go into spasm (periformis, psoas, glutes, etc.) and it becomes an entire myofacial pain issue. As soon as I get "unlocked" though...I have a much more tolerable pain level. If only the si would stay put. My husband is a believer in Tai Chi to regain muscle control of the pelvis - I may begin trying to understand this.
If you are not as unstable as I, and don't have disc problems or true EDS III - perhaps prolo could put you on the right track. Let us know how you make out.
Robyn

By Park Griffin on Monday, January 07, 2002 - 10:36 am:

Randy. If I were you I'd join the SI forum @ www.delphi.com/sijd/start. There are "swarms of people who are eager to help fellow SIJD sufferers.

Good Luck!!! Park

By Park Griffin on Monday, January 07, 2002 - 11:16 am:

Robyn, I'm sorry that you have learned so much about SIJD!!! SIJD is such a "catch-22" When you have SIJD, your inner core stabilzation suffers. When you lose stability, the SIJ's won't hold a correction, when you can't hold a correction, you can't exercise, whew!!! Stuff, you all ready know.

Has anyone ever showed you how to self-correct your SIJ's? Self corrections are critical.

There is a good forum @ www.delphi.com/sijd/start Also, @ www.kalindra.com there is plenty of articles dealing w/ SIJD. One article that you will want to print is an article called "Manual Therapy Rounds" This paper details exercises that can be done to self-correct the SIJ's.

Good Luck! Park

By bwells on Monday, January 07, 2002 - 06:24 pm:

Hello All,

I thought I'd put this question to any one here on the forum to see if they have any idea what could be causing this because as I'm pretty confused whats going on .

You see my shoulders were very unstable but now that my SI joints come out since last week my shoulder seem to have stabilised a lot more .

The odd thing about this too is that it is shoulder, and not SI problems that always been my problem , could my shoulder have caused my SI joints to get blown out ?

Dos any one have any ideas ?

Thanks


Brian Wells

By Randy on Monday, January 07, 2002 - 09:03 pm:

I have downloaded the articles that some of you have spoken of. They are of help but again, only temperary. Maybe I am not yet getting the full effect or proper effect of them. I will continue to see my chiropractor also.
Randy

By Park Griffin on Tuesday, January 08, 2002 - 05:23 am:

There is a muscle group called the erector spinae muscle group. Look them up on the internet for their anatomy. They travel between the sacrum and upper parts of the body. This most likely is what is causing translation of pain, etc..

One thing though at this point! It doesn't matter which was first. Once the SI goes out, it should take priority.

Good luck! Park

By Park Griffin on Tuesday, January 08, 2002 - 05:26 am:

Randy, it normally takes one of the exercises that require another person to obtain an initial correction.

Park