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I don't know what to do

Hypermobility Forum for people with Marfan, EDS: prolotherapy: I don't know what to do
Top of pagePrevious messageNext messageBottom of pageLink to this message   By Bonnie on Thursday, May 10, 2001 - 09:02 am:

I did 4 sessions with Dr. Hauser for last 3 months. I did not see any major improvements yet. The back does feel a little bit stronger and stable, but I still have a lot of pain and stingling down to my legs. I don't if I should stop prolotherapy or look for another more aggressive doctor like Faber. Does anyone know a more aggressive prolotherapist? I really want to get rid of this pain. I stayed home for the last four months. I just start to go to work this monday, and it is a painful everyday. I start to be scared of going to work! Any recommendation will be good! Feeling very very frustrated!

Thanks,

Bonnie

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Greg on Sunday, May 13, 2001 - 10:03 am:

Bonnie,

You should talk to Dr. Hauser about your concerns. Do he realize that you have HMS/EDS? If he does, he should know that w require very aggressive treatment. I didn't notice a big difference until after my 12 treatment. You should tell Dr. Hauser that you want more aggressive treatment. Remember, the doctor works for YOU, not the other way around. If he refuses to be more aggressive, kindly tell him that you will find another doctor who is willing to be more aggressive. Most importantly- give it time, it takes a long time to work. Also, get your hormones checked to make sure your body is in a maximally healing state. Best wishes

Greg

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Park Griffin on Wednesday, May 16, 2001 - 11:42 am:

I don't know the extent of your hypermobilty, but if your SI Joint is hypermobile, it is imperative to keep it aligned as much as possible. If your SI remains hypermobile it will affect your body from head to toe. Prolotherapy doesnt work very fast in loose or strained ligaments. If a ligament is being strained from your body being out of alignment, it takes time for a good matrix of tissue to form. Also in loose ligaments, where the ligament doesn't get energized along it's length, by normal physical activity, the matrix only forms at the attachment points and the body of the ligament is slow to repair.

One of the best research physical therapists, who has studied the SI Joint for 40 years, has joined a SIJD forum to offer help to SIJD sufferers. His name is Richard DonTigny.

He has developed a home exercise program to help people with hypermobile and sublaxed SI's. The longer you maintain proper alignment, the better and prolotherapy will work.

Visit this site: www.delphi.com/sijd/start

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Christine on Saturday, June 02, 2001 - 06:10 pm:

I have received 5 or 6 total body treatments from Dr Hauser in the last 6 weeks. I had two treatments last November. Please talk to Dr Hauser because he will do what you feel you need and he really listens to what you think your body needs. If you want to call me to talk about treatment I'm currently available on (630) 941 9085 #232. It has taken a lot of treatments for me to feel benefits but once you do it works better than anything else. I am scared because my parents can't afford the treatment anymore and I have to go back to Australia soon and I don't think I've had enough treatment.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By MR g on Tuesday, June 12, 2001 - 10:33 am:

hello all

i am currently in the us right now having recieved
treatment no 13 from dr Faber

if you haven't tried him he might be worth a shot
though i agree it hink you should try more aggressive treatment with Hauser first

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Bonnie on Friday, June 15, 2001 - 10:41 am:

Thank you for all your recommendations and support, I saw the physician assistant in Dr. Hauser Office last month. She gave the 1.5 cc SM solution to my entire low back. This time it takes really long time to get the inflamation to go away. It has been 5 weeks from now, I do still feel some pain from the shots. It costs me too much money to see dr. Hauser ( plane ticket and medical fee ). I am going to see Dr. Ouellette in Canada who is 3 hours away from where I live. He is a quite famous prolotherapist in Canada. I will see him on Monday and get an opinion from him. If he is good, I probably will stay with him.

Thanks,

Bonnie


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