By Peter on Monday, April 16, 2001 - 11:45 pm:

Hi Everyone,

I didn't start to walk until I was 20 months old. Have any other HMS/EDS suffers walked late?

Thanks
Pete

By Emma on Tuesday, April 17, 2001 - 05:45 am:

I am not too sure about how long it was until I could walk, but my mum says she had problems with me never sitting down as a baby, I would always try to stand by straightening me legs and pushing up when sitting on her lap.

By Kathie Gadd on Tuesday, April 17, 2001 - 01:31 pm:

I had bilateral congenital hip dislocation and have very hypermobile knees etc but was walking by 12 months..

By Sheena on Thursday, April 19, 2001 - 12:39 am:

Hi Pete
Our family walked early - my son (diagnosed with HMS) at 10 mths, daughter (some slightly hyper joints) 9 mths, myself (diagnosed HMS) 9 mths, my husband (some hyper joints) 9 mths. All were very agile as children, 3 of us had no HMS symptoms until teenage, but my son's sore (flat) feet started bothering him as a child.

By Patty on Thursday, April 19, 2001 - 01:10 am:

My Peter started walking at 9 months and one week. He started grabbing his knees and crying at 2 1/2. He also has flat feet that sublux a lot. My daughter walked at about 12 months and had no pains until older. She is the most mobile of us all.
???How many of you can fold your hand so your little finger's third joint is touching your thumb's second joint?

By leonarda on Thursday, April 19, 2001 - 12:24 pm:

Patty, about the hand-bending trick, I don't make a habit of showing off my mobility, but I figured why not. Yes I can do that. No use in trying to handcuff me! ???Can you do that with your little finger's 3rd and your index finger's 3rd as well?
But back to the issue:
Walking at 13 months looking like a duck, running quite late looking like a windmill. Still walking like a duck (a drunk one) not running anymore. possible congenital hipdislocations. (ortolani test was 'doubtfull' but there was no further examination as I had other more pressing health issues at the time)

By Peter on Thursday, April 19, 2001 - 05:11 pm:

Hi Everyone,

Thanks for your replys. Looks like HMS doesn't effect the age you walk.

I'm a bit different. I had flat feet as a child, but have high arched feet as an adult. Seems to be very unusual for a HMS person. High arched feet are poor shock absorbers, so walking is a problem. Lots of muscle soreness and tendonitis.

Thanks again
Pete

By Peter on Thursday, April 19, 2001 - 05:44 pm:

Hi Everyone,

Thanks for your replys. Looks like HMS doesn't effect the age you walk.

I'm a bit different. I had flat feet as a child, but have high arched feet as an adult. Seems to be very unusual for a HMS person. High arched feet are poor shock absorbers, so walking is a problem. Lots of muscle soreness and tendonitis.

Thanks again
Pete

By Patty on Sunday, April 22, 2001 - 06:01 pm:

Leonarda, I nearly have to use two hands to get the thumb to the little finger and cannot do the index finger to the little finger. However, my daughter can do the base of the thumb to the third joint of the little finger with no help. She can also get the index joints togetherwith flexibility to spare.
We saw an orthopod six months after I shut her hand in the car door because of lingering pain. He freaked when he felt how squishy her hand was. About made him sick. He DIDN'T even suggest a hypermobility problem. Disgusting.

By nb on Friday, April 27, 2001 - 05:07 am:

my son hypermobile/hypotonia now 4 walked at 24 months
my daughter is 13 months - hypermobile mild hypotonia and is not yet walking tho she can bear weight when she stands...she is beginning crawling.

yes hypermobility can affect walking! in my kids - it's the hypermobile hips .....

i think it depends which bits of you are specially hypermobile!

and i know of HMS kids that can walk but not very far before joint pains / tiredness set in ..they use buggies or trikes etc

natasha

By Vicki on Tuesday, May 01, 2001 - 09:39 pm:

natashs,
Hi I just found this site. My daughter 11 yrs old was diagnosed with hypermobility syndrome about 2 yrs ago. She is seen at scottish rite hospital. but I haven't met alot of parents with kids with hypermobility. My daughter is always hurting herself. we've been though ankle braces, wrist, arm supports she's been on crutches and in spent her vacation in a wheelchair. she is currently in a knee brace and on crutches again. she feel and hurt her knee but her hip also slid out of place and she put in back in. do you find it tough to allow them to be kids but try to protect them from getting hurt? It's really tough when people tell me "well maybe she souldn't be doing those activities" She can get hurt doing the most normal everday activity. I can't keep her from everything. I don't know another mother who is going though this too. How do you feel?
vicki

By anya on Saturday, May 05, 2001 - 05:37 am:

Vicki,

About the crutches... I really have to make a remark about this. What kind of crutches are they? I walked on ordinary ones, the type you lean on with your hands, for three years. It completely ruined my wrists. In the base of your wirst there are all these little bones, those bones pop out of place now every time I move my hand and it is very hard to get them back in place and unrewarding too as they pop right out again the next time I move my hand. It is annoying and painfull. I know there are elbow crutches which don't cause this problem but I never tried them. Please be carefull, stay alert and make sure your daughters doctor is too. It's hard, crutches, you can't do with them, you can't do without them.

By Patty on Sunday, May 06, 2001 - 03:49 pm:

Crutches are deadly for me. I had to use them twice for six weeks each time three weeks another time and now I can't even put weight on my hands down in the hands and knees position - I have to keep my wrists straight and put the weight on my fists. If you have shoulder problems it can be bad, too. I have no idea what I'll do if I need them again!

By Vicki on Sunday, May 13, 2001 - 08:24 pm:

anya
I understand about the crutches. I told my daughter to be very careful on them. I warned her not to any walking she didn't have to on them just to get around school when she had to. I was so worried she would hurt her wrist because she is already in the middle of physical therapy for her wrist. She dosn't like being on the crutches so she got off them as soon as she could bear weight on her knee. which isn't really good for her knee either. I don't want her pushing it and making things worse. It seems like such a mean cycle. Do we pick the wrist or the knee??? just pray for the best. She really is a tough kid and seems to tolerate pain extremely well. Her doctor sugested she walk with the immobilizer on her knee without the crutches. But it covers her from higher than mid thigh and down to below the calf. it's extremely uncomfortable and living in Texas it is to hot to wear this close to summer. She comes home from school with the brace soaked with sweat. thanks for your reply