By Chris on Monday, June 05, 2000 - 06:02 pm:

A client has presented with general hypermobility of all her joints. Her physician sent her to a rheumatologist
to rule out lupis which it indeed did. My client remains concerned and has often been alluded to that its all in her head.
What the best pathway to travel to be diagnosed with true hypermobility syndrome or Ehler's Danlos syndrome.
What type of doctor would recognize these signs?
What kind of tests can be performed to indicate these pathologies?
I would appreciate any input. THANKS.

By Gwen on Monday, June 05, 2000 - 06:02 pm:

Chris, where are you and your client? Is there an EDS support group in your country/area? Often word of mouth is the best way to find a knowledgeable health
professional. A couple of weeks ago Janie posted a list of links to EDS/HMS websites. If you scroll down the postings a way you'll come across them. Good luck.

By Pam on Monday, June 05, 2000 - 06:03 pm:

Chris, we all seem to have left your question alone, probably because it's so difficult to answer. From personal experience, perhaps she should find a good teaching
hospital and keep going back until she finds someone who will listen.

From reading some of the postings, occasionally you may find a orthopedic surgeon (so far we haven't), or a genetics expert (haven't tried one yet) that can diagnose
HMS/EDS.

It seems to be a personal battle for each of us, and she need not think it will end when she receives a diagnosis--there are still sceptics to deal with around every
corner.

Good luck.