HMS-2000

Hypermobility Forum for people with Marfan, EDS: OTHER ISSUES: HMS-2000
Top of pagePrevious messageNext messageBottom of pageLink to this message   By Sarah Letton on Monday, June 05, 2000 - 04:05 pm:

Hello everyone!

I am still looking for information and stories from those with HMS to sift through and compile in to another web site (HMS-2000). I have been contacted by many
sufferers in seven different countries. Having scanned this site,it appears that there are now more people from the UK logging on. It would be great to hear from
those in the UK (where the situation seems to be particularly 'challenging'), but I would also appreciate contact from those of you in other countries too.
My research has slowed down in recent months due to a change in personal circumstances, and the fact that I no longer have a PC at home(!), but I am trying to
remedy this.

So, please e-mail me with any kind of information on HMS - especially your on experiences with the Syndrome.

Wishing you all the very best of health (!!!!)
Take care,
Sarah

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Sjottie on Monday, June 05, 2000 - 04:35 pm:

Dear Sarah,

Recently a dutch group of people with HMS started a website.
If you send a message in the message-board I'm sure you get a reply.
Adress; www.geocities.com/hmsnederland

I wish you all the best, Sjottie


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