By john b on Friday, June 02, 2000 - 01:43 pm:

Posted by john b on May 23, 2000 at 11:56:24:

My wife has ehlers and she also has nerve damage in her lower legs and feet which makes it hard to walk. I would like to know if anyone els has these same problems. The doctors tell us the nerve damage is not related to ehlers but I am not so sure about that. I still think there may be a connection somewhere. Please help.

By Sue C on Friday, June 02, 2000 - 01:43 pm:

Posted by Sue C. on May 27, 2000 at 18:10:24:

In Reply to: ehlers-nerve damage posted by john b on May 23, 2000 at 11:56:24:

Has she tried anything physical to relieve the problem -- i.e. exercise, physical therapy, chiropractor, massage, laying on the floor and stretching until the joints re-align?

By Stefan Back on Friday, June 02, 2000 - 01:44 pm:

Posted by Stefan Back on May 25, 2000 at 09:12:29:

In Reply to: ehlers-nerve damage posted by john b on May 23, 2000 at 11:56:24:

Yes, I have these problems due to hypermobility (Ehlers-Danlos syndrome, hypermobility type) of the mid-back and the lower back. The nerves get stretched and/or pinched every day in the back, and the symptoms are not back pain but abdominal pain and lower leg pain. My uncle and mother have also pain in the lower legs.

Note that nothing is wrong with our legs. It’s a back problem due to EDS.

Stefan

By Jen on Friday, June 02, 2000 - 01:44 pm:

Posted by Jen on May 25, 2000 at 11:54:47:

In Reply to: Re: ehlers-nerve damage posted by Stefan Back on May 25, 2000 at 09:12:29:

I also have pain in my legs due to hypermobility of the spine. When a nerve is pinched it's agony but then the spine will "click" back into place which is absolute bliss!