By Ellen on Friday, June 02, 2000 - 01:37 pm:

Posted by Ellen on May 25, 2000 at 09:45:51:

My 20 yr. old daughter has just been given a
"probable" diagnosis of Type III Ehlers Danlos. I
have just discovered this bulletin board and see
several references to sinusitis and allergies.
Does anyone have any links to sites where this is
discussed? It would be so interesting to tie
together some of the problems she has suffered
from for so many years. She has low IGA, which
the doctors say explains her frequent infections,
but so far we haven't been able to keep her well
for long, even with prolonged use of antibiotics.
Does anyone else have low IGA? Thanks!

By Andrea Thomas on Friday, June 02, 2000 - 01:38 pm:

Posted by Andrea Thomas on May 27, 2000 at 13:47:01:

In Reply to: EDS and sinusitis posted by Ellen on May 25, 2000 at 09:45:51:

Dear Ellen

I have EDS III/Hypermobility Syndrome, and I suffered from near chronic rhinitis and sinusitis with every cold, and I have low IGA. So did my mother, and so does my sister. Our mother, who believed in conventional medicine and in nothing else, was constantly on antibiotics which, of course, after a while did not work any more and then she had to be given different ones. The antibiotics also affected her stomach quite badly. My sister has now given up cow's milk (but not other dairy products) and says that her chronic nasal symptoms have virtually disappeared. She had been given this advice by a doctor in complementary medicine. I was given the advice to try and boost my immune system (by a nutritionist friend of mine) and start taking high doses of vitamin C and flax oil (I have now reverted to cod liver oil because I had difficulties digesting flax oil). I started taking these at the beginning of the year and I have never had a cold or sinusitis since.

I hope this does not sound like unsolicited advice but "if they don't help they won't do any harm", so maybe your daughter would like to consider one or the other of these "cures", or all.

Good luck - Andrea

By Robyn on Friday, June 02, 2000 - 01:38 pm:

Posted by Robyn on May 26, 2000 at 21:39:46:

In Reply to: EDS and sinusitis posted by Ellen on May 25, 2000 at 09:45:51:

Hi... I have EDS type III. I was diagnosed in my mid-20's back in 1994. I personally have not had problems with sinusitis. My mother on the other hand also has EDS and she used to always have problems with allergies and sinusitis. Seems like she's allergic to everything. It could be related to the EDS but I am new to this board and plan on checking out the possibilities of the relationship. I am finding right now that I really need to learn more about this rare disorder.