By TET on Sunday, August 19, 2001 - 03:33 pm:

I have HPU,an(erfelijke stofwisselingsziekte)hereditary metabolism -females-illness, wich causes probably my hypermobility.
I just started taking Depyrrol. It contains 30mg zink, 25 mg mangaan and 50mg pyridoxaall-5-fosfaat. These are the minerals that I lack because of the metabolism-deficiëncy.
Is there someone else who got this diagnosis? My doctor told me to do the urinetest at the KEAC (Klinisch Ecologisch Allergie Centrum, Dr. J.Kamsteeg)
Does anyone have experience with this medicine.It is due to start working after 4 months. Whose complaints got less, taking these pills?
Especially Dutch people, respond!

By Karen on Monday, August 20, 2001 - 02:06 pm:

Hi Tet,

I've tried to find info on this condition. I've searched Medline medical database and cannot locate it.
Can you describe the condition, and whether any studies have been done on it?
Thanks,
Karen

By Sofie on Tuesday, August 21, 2001 - 02:09 pm:

Hi Tet and Karen,

The English Version you can find here:http://home-4.worldonline.nl/~t159602/index.html#hpu.html

I'm from The Netherlands and I've read a lot about HPU recently. I'm very sceptic about it because anyone with any illness can have HPU, the list of symptoms is just to long.

But maybe you think something else of it.

Take care, Sofie

By Mei on Wednesday, August 22, 2001 - 07:46 am:

Sofie, I am sort of worried about this HPU-stuff. Especially since they claim it is THE numberone cause of hypermobility and they claim they can fix it with dietary supplements. I not only don't believe this but I find it alarming aswell. There might be something like HPU and it might be fixable but I don't believe it is the main cause for problematic hypermobility. Which in my opinion comes from genetic connective tissue disorders. I would like to hear your thoughts on the subject. I am also wondering why it is only 'known' in The Netherlands.

By Tet on Wednesday, August 22, 2001 - 01:04 pm:

Thanks for your reply, folks. Excuse my languagefaults (I dont have time to look up terms in dictionarys when I'm on internet).

Sofie, where did you find all the info about HPU? Can you tell me some links/sites? Thats interesting for Karen too.

I am rather desperate about my hypermobility. My "familydoctor" (huisarts) said allso: the symptoms of HPU are a lot similar to ME, Fybromyalgie, spastic intestines. But this one you can test in the urine, and if the supplements help in 4 months, it is worth the try.
I don't expect it to cure my hypermobility, but makes my condition better: like curing faster from blessures, feeling less exhausted, get rid of my migraine, having more energy to do my exercises (fytness).

I learn a lot of this site, but it allso confuses me: contradictions.
Bye

By Tet on Wednesday, August 22, 2001 - 02:10 pm:

Oeps Sofie,
I just read the Englisch version of the HPU-site you recommended allready.
I read it áfter I send the message before this one. Thanks. But I still am glad I take this medicine "specific mineralsupplies". I feel better since I started taking them a week ago! Lets hope it continues to help this way...

By zack on Thursday, February 07, 2002 - 02:55 pm:

is this illness only restricted to females ?

thanks

zack

By Margareth on Friday, February 08, 2002 - 02:49 am:

I don't know Zack but there's something weird about this whole HPU-thing anyway, read the posts by Sophie, Mei and Karen, check the website. There's something suspicious about this whole thing if you ask me...

By Ian on Friday, February 08, 2002 - 02:40 pm:

Margareth - I agree with you! Ian