Menieres and hypermobility

Hypermobility Forum for people with Marfan, EDS: RELATED CONDITIONS: Menieres and hypermobility
Top of pagePrevious messageNext messageBottom of pageLink to this message   By Eve on Monday, June 05, 2000 - 05:08 pm:

Does anyone have menieres disease as well as hypermobility?

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Gwen on Monday, June 05, 2000 - 05:08 pm:

My mother has had Menieres for years, also a sensation like having a cricket inhabiting the same ear. The two sensations seem to be quite different. The Menieres is
a high pitched buzz, rather like a bandsaw while the other is intermittent and lower pitched. The cricket sound she was told was muscle related and caused by the
inner ear spasm. Mum has had joint problms for years (now 83) and only last week her doctor said that her chest pains were due to cartilage problems. She is
otherwise fit and flexible and is able to touch her toes so we are inclined to think she is also an HMS sufferer.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Sheena on Saturday, July 01, 2000 - 03:51 am:

I don't have Menieres but I do have vertigo. At its worst I could be lying in bed and have the room spinning around me. Even moving my eyes would trigger it. I get travel sick on ferries or coaches. I can't dance if it involves twirling round or do side-bend exercises. (It used to come on without obvious cause - first of all everything would get too loud, then the vertigo - but this hasn't happened so often lately).
So strictly no ballroom!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Eve on Saturday, July 01, 2000 - 01:58 pm:

Sheena you sound as if you have begnign positional vertigo, it can be treated

I suffer from menieres and positional vertigo

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Sheena on Saturday, July 01, 2000 - 02:20 pm:

Eve,
What treatment have you had for the positional vertigo? I had a brain scan and an evoked potentials test (I think that's the name - I had electrodes on my head and earphones making clicking noises) to confirm the diagnosis. I was offered physiotherapy which consisted of doing the movements that made me feel sick with no guarantee it would cure me, so I stopped it. I also take Stugeron (travel pills) if I get an attack.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Gwen on Saturday, July 01, 2000 - 07:29 pm:

I developed vertigo over the last few months. It only seems to come on when my neck is playing up so I suspect it is due to problems with my atlas joint and upper cervical veterbrae putting pressure on the nerves to my inner ear. I know they are deteriorated and my C2 in particular has an arthritic malformation on one side.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Eve on Tuesday, July 04, 2000 - 02:43 am:

Sheena, there is a special physio treatment that is done for positional vertigo, the dizziness is caused by deposits in the inner ear floating around where they shouldn't be, with this treatment they move your head around to make these deposits go into a different part of the ear where they shouldn't cause the dizziness.

I haven't had it done because I suffer terribly with my neck joints!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Carol Reese on Thursday, January 22, 2004 - 06:08 pm:

Just read all of the above and am a bit worried.I have just been diagnosed with HMS and osteoarthritis,plus have had carpal tunnel ops on both hands.Altho' I have only just been diagnosed with all of this I have suffered with pain in my knees and both upper limbs for about 8years or so.But,for the first time ever I have just got over an attack of vertigo,which made it impossible to function,I mean walk,for at least 36hours.I wondered is it related in any way?

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Midhelle Castle on Saturday, January 24, 2004 - 09:37 pm:

Carol,

I don't know what relation, if any, exists between HMS and vertigo, but I'm curious after reading these posts. I have HMS and get dizzy and lightheaded alot. I know what triggers it for me - sitting or standing up too quickly, or turning my head back and forth too quickly, espcially when walking (like scanning ailes at the grocery store!) I've never really worried about it, never discussud it with a doctor. It can be pretty severe, bringing me to the verge of passing out rather quickly (or at least that's how I feel).

Anyways, I don't know if it's related to HMS at all, but I'll do some digging on the subject...

Michelle

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Cheryl Brawner on Sunday, January 25, 2004 - 04:35 pm:

I don't know if this post is appropriate here, but I have been suffering from an inner ear nervous-type twitch which is intermittent, but returns after a 36-48 hour hiatus. It sounds like a bad drummer thudding on my right eardrum at an intermittent cadence.
It is only annoying at this point, but I wonder if anyone has had such an experience, and if so, what the prognosis was? I have gone to an ENT and he has only diagnosed an external ear canal infection which is being treated with drops. I have also had some minor facial spasms (lip and eye), which are occurring at times. I have been under a lot of situational stress and anxiety lately due to personal problems. I am not a hypocondriac and am otherwise very healthy and pretty fit. Any feedback?

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Ros on Tuesday, February 03, 2004 - 06:50 am:

I was suspected of having Menieres, but it was eventually diagnosed as vestibular neuritis. It isn't positional - it's brought on by exposure to cold temperatures in my case.

Ros


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