By Liz on Monday, June 05, 2000 - 04:54 pm:

Does anyone else have both of these disorders? My previous physiotherapist also had both disorders and wondered if the hormonal imbalance in polycystic made
the joints looser and more painful - we both have a lot of joints affected and find it very disruptive of life!

By Colleen on Monday, June 05, 2000 - 04:55 pm:

I also have both syndromes, and am continuously looking for relief for both

By Eppie on Monday, June 05, 2000 - 04:55 pm:

There is a DEFINITE connection between ovarian cysts, hormones, and hypermobility (I AM LIVING PROOF). Search for earlier posts by me, or email me with
questions.

By eric on Monday, June 05, 2000 - 04:55 pm:

I know that there is a connection between polycystic ovarian syndrome and insulin resistance

By Gwen on Monday, June 05, 2000 - 04:56 pm:

I don't know anything about a connection between polycystic ovaries and EDS/HMS but there is a connection between polycystic ovaries and a urine retention
disorder called Fowler's Syndrome.

By Eve on Monday, June 05, 2000 - 04:56 pm:

I have both syndromes though I didn't know they were connected.

By Betty Sue on Monday, June 26, 2000 - 01:34 pm:

I also have cystic ovaries, and I mentioned to my Gyn on Monday that other women in the HMS group have cycstic ovaries, and he shocked me! His reply was "yes, collagen based disorders will cause that". The shock was a doctor having knowledge of HMS :)

By Sheena on Saturday, July 01, 2000 - 03:37 am:

I have HMS. I had my ovaries removed due to a cyst. (It turned out that the cyst had grown round the bowel - I felt a big difference when it was removed). Earlier in my life I had an annoying cyst just inside my eyelid which was removed (3 times, actually). I also had an adenoma removed from my thyroid. I previously had a hysterectomy because of a fibroid. Are all these growths connected with HMS or just coincidence?

After the removal of the ovaries I discovered I had a gall-stone and had my gall-bladder removed. Is that relevant or just coincidence?

An alternative doctor told me that although I had the ovaries removed I would still have other cysts somewhere inside. Is that correct?

By jessamyn on Wednesday, April 02, 2003 - 10:54 am:

Hello,
This is for any of you that mentioned ovarian cysts and HMS as well as other things that could be connected. Can someone please give me more info. I have cousins that had childhood reumatory arthritis and although my blood didn't test positive, I had many symptoms and was treated. I have had several ovarian cysts, one large one removed, including the ovary. I have had two surgries on my right shoulder due to bone spurs and had knee problems as a child while playing sports. I don't have the long fingers or indented ribs but I am six feet and long-limbed. I have had severe back pain on and off for the last couple of years and clicking and poppong in joints such as right shoulder, right hip, right knee, right ankle. I have had rauynaud syndrome?(spell)since I was a child in both feet and both hands. I now have a right hip that "goes out" and my new PT says, wow, you are hypermoblie!!! No has ever told me this, no doctor or anyone. I have always been the "freak kid" who can put her feet behind her head and pop her elbows and shoulders out. I am amazed with finding this website and seeing that others have all this stuff in common. Why aren't doctors telling me this? I also saw some of your guys' postings saying cronic sinusitis is sometimes a factor? I also have this and have had major surgery on both sinuses to empty them. Please anyone who has advice on how to find help or any support from anyone who my story sounds familiar to. thanks-

By Az on Sunday, April 06, 2003 - 08:18 pm:

Hi jessamyn you really need to get this officialy diagnosed by a rheumatologist. It sounds very much like you have a type of Elher danlos, as there are many different types and the symptoms can be very similar in all no one, but an expert can really diagnose you. The double jointedness is definatley a sign of hypermobility, but your height could identify you as a candidate for Mafans these are very similar in ways and very different in others. For most EDS there is no blood test that can diagnose you, but you can be diagnosed from a scale called Beightons this is where your range of movement is tested eg/ how far back your elbows bend the wrong way. As far as i know its only marfans that has more tests that can help diagnose you. your optition could diagnose it as the eyes are nearly always affected they sublux like your elbows do. make sure you push for a proper diagnoses then you can get the proper help you need.
Sheena snap I had 3 cyst on the inside of my eyelid I am suprised it could be related to HMS, but I am so glad that I refused for it to be drained under local anastetic now I know I was right it doesnt work, thankfully after a lot of been called a baby and a sissy by the doc he gave me a general to drain it.

By Mandy on Monday, April 07, 2003 - 02:50 pm:

Swollen ankles. is this anything to do with HMS? Both ankles are swollen even when i wake up. I can hardly walk, they are so stiff & aching. Just started about 4 days ago. Anyone the same?
Hugz Mandy XXXX

By Margareth on Tuesday, April 08, 2003 - 06:52 am:

I get oedema from my shoes and from sitting too much....

By jennieapter on Saturday, August 23, 2003 - 11:59 am:

I'm curious about the ankles too. Mine are verry puffy and get stiff when I walk. Does anyone have any treatment ideas?

By effo on Friday, March 19, 2004 - 08:39 am:

My Wife has Polycystic Ovaries she goes through alot of pain with swelling and cramps.