By Sjottie on Monday, June 05, 2000 - 11:06 am:

Posted by Sjottie on April 09, 2000 at 05:11:52:

Hello, I'm Sjottie from Holland and I'm 34 years old. Please excuse me for my English!
I hope anyone can help me.
After having vague complains and chronic pain for the past three years, my physical therapist told me I'm hypermobile.
X-rays from my back and hips, showed I have minor arthrosis in the three lowest vertreba (tail-bone) and in my both hips.
* Can the arthrosis being caused by hypermobility?
It seems as if the pain 'travels' through my body affecting more and more joints.
The pain and stiffness started in my neck, shoulders, upper-chest and hands.
Later my hips and now my knees and ankles too. It also 'cracks' more and more.
Sometimes they seem stuck, for example when I'm driving and I need to pull up my leg, I can't, then I lift up my upper-leg with my hands, make a sort of turn, and it 'works' again.
It does'nt hurt very much, but when I have it once, I have to be carefull the rest of the day because it can easily happen again.
And my rib does'nt come back in original place when I bend over too far.
* What do you think, are these subluxations?
* Does anyone having the skin of their handpalms and footbed becoming wrinkled and numb-like sometimes?

Thank you for reading this and I wish you all the best !!!!

By Bianca on Monday, June 05, 2000 - 11:08 am:

It seems, that hypermobility is one of the highest risk factors for developing general arthrosis.
Hypermobility itself is not a cause for arthrosis, but the following three factors of hypermobility help to develop arthrosis.
First: you can move your limps over the range your joint structures are made for. So you can make mikro wounds to the structures by doing that.
Second: The healing of damaged joint structures is slower than for normal people.
Third: A lot of people with HMS has a bad feeling for, in which position their joints are, so they do not feel when they hold their joints in unormal and unhealthy positions.
The good news is, that arthrosical damages can heal, but it needs a very long time and you have to take a lot of caution, that you do not make more damage to it.
The phemomenas you describe seems to me to be subluxations of your ribs and of your hip. I subluxate my right hip also when I try to lay on the side on the ground and make a movement like biking. ( An exercise of my PT). I feel then that my leg in the hip is scrutching down and back for maybe 5 Centimeters. It only hurts me, when I do it a few times together. My mother told me that I had hip dysplasia as a child, a common thing in hypermobile people.
I wish you all the best.

By Odds on Monday, June 05, 2000 - 11:09 am:

Hi Sjottie,

Maybe you'll find it intresting to know, that right now, we have a small group of 6 dutch people who frequently email eachother in Dutch, about our HMS. We try to keep eachother informed about the doctors and therapies.
If you feel like it, please e-mail me !
It might be handy if we become a bit larger group, so maybe one day we can do something about all the mishapps in our medical circuit here in Holland, concerning HMS.

By Sjottie on Monday, June 05, 2000 - 11:11 am:

Hai Odds,

Ik heb je vandaag een mailtje gestuurd ivm je reply op mijn oproep.

Daarna heb ik een mailtje gestuurd naar de Libelle, ik had het oproepje nl ook gelezen.

Weet jij of Ineke Slagwater een e-mail adres heeft en of het anders mogelijk is om onze reacties naar de Libelle te mailen?

Ik heb de mijne wel vermeld, maar nog niets gehoord.

Ik zal nog even afwachten en dan het adres van de Libelle doorsturen naar degene waar ik mee mail ivm HMS.

Dat was het weer, groetjes Sjottie