By El on Wednesday, January 17, 2001 - 05:47 pm:

Has anyone recently had this done (Past year or so?) I would like to know what to expect with our pain tollerence. I have EDS hypermobility. My left side is going to be replaced. Xray's show total deteriation. Don't hold back. I would really like to know what you went through just so I am prepared.

By El on Sunday, January 21, 2001 - 06:57 am:

I'm guessing no one has had this done. Oh well, wish me luck =)

By Vicky in England on Monday, January 22, 2001 - 09:10 am:

Dear El
No, I haven't had it done, but I did have my wisdom teeth removed as they were growing horizontally instead of vertically; the old bendy roots kicking in! The main problems I had was that the doctor didn't want to use full anaesthesia cos of my asthma, so I had a lot of pain immediately due to HMS affecting the efficacy of Lidocaine. Then I have alot of scarring in my mouth, so that can cause me some problems. I found that really resting my body, and doing all the alternatives to medication to curb the general pain for a good two weeks before and until the pain goes after mean that any anti inflammatories you take can really work on your jaw. But avoid taking a hot bath until any wounds have healed up some, cos it increases blood flow and you may stop the wound clotting efectively. I don't know if any of this will apply; but you sound like you feel the way I do; I wold always rather know everything that might happen so that if it doesn't I can feel surprised in a good way rather than something happening I did not know about and being surprised in a negative way!If you want to discuss the Lidocaine effect with your doctor, then it is in the pain and hypermobility essay that is on the english HMS site that is in the links from this site.
Apart from that best wishes, huge hugs and all the luck in the world
Vicky

By Connie on Thursday, April 26, 2001 - 06:23 pm:

Hi,
I have a 12 year old son with TMJ. He is also double jointed. We are trying to find out about the relationship between the two. We are currently seeing an orthodondist, who has given Chase a retainer to wear. He also takes acetaminophin every four hours, and applies heat and cold. He doesn't chew gum, or any hard, or chewy candy. It has helped him, but he's still in a lot of pain. Any suggestions? Please feel free to email me with any ideas. Thanks!

By Vicky in england on Sunday, April 29, 2001 - 06:44 am:

Connie - what is TMJ - it's not a term used in england ( i think )

By Sharon on Sunday, April 29, 2001 - 04:58 pm:

TMJ is Tempro Mandibular Joint which is the joint in your jawat the back near your ear. TMJ also referes to a pain condition in this joint
Hope this helps

By Gail on Sunday, September 30, 2001 - 12:42 pm:

hi there, I have hms and my real pain just now is coming from my jaw, it is really getting me down because you cannot eat or yawn or anything, and it really gets you down. I would just like to know if anyone else gets problems with their mouth.