Has anyone else ever Dislocated there Pelvis ??????

Hypermobility Forum for people with Marfan, EDS: Dislocations and subluxations: Has anyone else ever Dislocated there Pelvis ??????
Top of pagePrevious messageNext messageBottom of pageLink to this message   By Sharon on Thursday, June 21, 2001 - 10:17 pm:

I have just found out that I have had a dislocated pelvis since I was 12 years old and that it is still dislocated to this day. Has anyone else ever heard or experienced this (It has never been "back in" and I doubt if it could be put back in now) I am 30 years old, and was never told about this even after seeing numerous doc's as a child for hip/pelvis/SIJ pians and I can see it on the x-rays taken then.
Thanx for any comments
Sharon

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Johanna on Friday, June 22, 2001 - 10:29 am:

Messed up my left SI bigtime a few days ago. Physio says he put it back but I have my doubts.
It still feels like screaming agony. I don't have much 'pelvic-experience' yet, but I do have some experience on 'permanently mislocated joints'. That's why I am going to keep an eye on my pelvis. Some of my ribs, my lunatum (in my wrist) and my tales (in my ankle) have been in the wrong place for years now. Some physio's and docters have tried to put them back during these years but noone has been able to do so yet. It just pops right out of place again the minute you let go of it. But not all our body's are the same I hope you will find a solution for your pelvis!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Sharon on Tuesday, June 26, 2001 - 04:29 pm:

My dislocation is not my SIJ it is the whole Right side of my pelvis. The entire right side of my pelvis has moved, has dropped and moved and has been like this since I was 12 years old. Has anyone else got experience with this? Or like other things Am I just weird??
Sharon

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Max on Wednesday, June 27, 2001 - 02:12 am:

Nope not weird, this happened to my cousin in pregnancy - she had to walk with crutches for a long time and still has problems.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Silvia on Wednesday, August 29, 2001 - 04:15 pm:

Hi Sharon,

You're not weird...I'm also 30 and found out last year that my right hip/pelvis is rotating forward more than my left. My right SI joint also rotates forward. And my right leg is also longer than my left...If you see an X-ray of my hips you can clearly see that my right hip is higher than the left.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Judy on Thursday, August 30, 2001 - 10:28 am:

Silvia,

I appear to have the same problem at 51 and the physical therapist thought a lift in my left shoe would help. I am trying it but so far I can't tell that it makes any difference. Have you tried this or some other brace? I figure an SI belt would not be good for me since tight things around my waist cause the joint to go out. I sure would appreciate any bit of advice!
Judy

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Dianne Bray on Tuesday, December 04, 2001 - 10:45 am:

My daughter, 16 was found to have a shifted pelvis 6 years ago. It was up on oneside and also rotated forward. She has had it realigned several times by PT and chiro but it never seems to stay. Also has shoulder that dislocates, shoulder blades that wing out, knees and hips that crack really loud, has slipped a disk and dislocated her fingers and jaws on several occasions.Doctors don't take it seriously but she is in pain - help or suggestions welcome

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Mei on Tuesday, December 04, 2001 - 12:03 pm:

Dear Dianne

If you are in the UK please see prof. Grahame. Your daughters complaints sound very familiar to me. I was diagnosed with hypermobility syndrome last year.
Try visiting the HMSA-site www.hypermobility.org there is a lot of useful information there. I found the texts under 'Pain and Hypermobility' and 'Diagnosis' particularly helpful and supporting.
If you have access to a medical library you could also try to get a hold of a copy of the journal 'Rheumatology' 2001: 40, there are four interesting articles on hypermobility in this issue.
Good luck and keep searching for answers and recognition,

Mei

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Ian on Tuesday, December 04, 2001 - 12:12 pm:

Dianne
Regrettably some Doctors do not seem to have a clue about hyper mobility. Your daughter would appear to very much be a candidate for HMS and you really need a diagnosis by a specialist.
Being realigned is OK but in most cases a better muscle tone can help control joints better and there is a need to ease her pain. Keep away from any jarring exercise. Regards (mercedes_nz@yahoo.com)

Top of pagePrevious messageNext messageBottom of pageLink to this message   By cocoa on Monday, September 02, 2002 - 11:37 pm:

for more info plz go to kalindra.com there is valuable info about SIJD

Top of pagePrevious messageNext messageBottom of pageLink to this message   By angiechadwick2003 on Tuesday, May 13, 2003 - 02:01 pm:

I have problems with my hips,and by reading up on everyone elses problems that they suffer (though this sounds awful) but it really helps me identifying with every one else,as i havent had any info with doctors,physio etc as the nhs is so slow. I have had pain with hms for 2yrs now im 30 and my hips have been giving me problems for about a year,one side feels higher than the other my balance is compleatly out and my mates take the mick coz i walk like im drunk most of the time. I no longer drink as i went to a christmas party and got a bit tipsy (as you do) and i fell over constantly which has never happened before! anyway what i wanted to say is that thank-you for not making me feel that im the only one. x angie


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