Wrist-help!

Hypermobility Forum for people with Marfan, EDS: Dislocations and subluxations: Wrist-help!
Top of pagePrevious messageNext messageBottom of pageLink to this message   By Leonarda on Sunday, June 04, 2000 - 05:32 pm:

Hello,

Could someone help me out please? My one wrist hurts terribly these last few weeks. According to my physiotherapist, one of those tiny bones just beneath my
hand (either the lunatum or the capitatum, for insiders) has shifted out of place. He can put it back, but it just pops right out again at the very next movement. Moving
my hand or even my fingers is very painful. Does anyone know a trick to get the little troublemaker back in line?

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Leonarda on Sunday, June 04, 2000 - 05:32 pm:

Had a talk with my Physio about the wrist-thing again. He is now sure it is the lunatum, he was able to tell me what exactly happens when it pops up. Apparently the
lunatum isn't attached to any muscles. He told me what keeps it in line are some tiny ligaments... One of these ligaments is worn out, (big surprise) so when my wrist
bends, the lunatum just doesn't follow, it stands straight whereas the rest of my hand bends down. Eventually this starts irritating the rest of the wrist/hand. The only
remedy seems to be to just tape it every now and than, to give the other tissue some rest.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Anthony on Sunday, June 04, 2000 - 05:32 pm:

Watch out for the wrist problems, if your read about thumb fusion I posted you will see what a wrist problem I have been having, and some not to do with being
hyper mobile of having EDS it's called Kienbock's disease, where the LUNATE the timy little bone in the top of your hand does not get the blood supply it needs
and dies, casueing mutch pain, lack of motion and grip, Ask for an MRI even if it keeps just popping out, just to be safe PLEASE I don't want to see others go
through what I am experiencing now. An xray will not show the problem until it goes into stage 3

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Ian on Sunday, June 04, 2000 - 05:33 pm:

I would be inclined to get a wrist support and there are many on the market in various sizes. An elastic knit band would probably be of benefit. Not too tight that it
cuts off circulation - but enough to help out your own muscles/tendons to give support.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Leonarda on Friday, June 16, 2000 - 04:45 am:

Got splints with iron on top of and beneath my hand. Rheumatologist doesn't know what else to do. Fixating it in an operation would just cause more trouble elsewhere. Grin and bear!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By sue on Monday, June 19, 2000 - 06:49 pm:

I can't believe it someone actually wrote about Keinbocks disease. Anthony I have it in both hands and have my right hand fused and my lunate bone removed. I don't know if it EDS or Keinbock is the pain in my hands. Both are miserable disease.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By lisa on Wednesday, August 09, 2000 - 11:39 am:

I`ve only just found this web site,take heed it took 3 years to get a definitive diagnosis of a subluxating lunate and I worked in an operating theatre with my surgeon!, however 7 years later my wrist has never subluxed since the surgeon operated. Although I`ve lost about a third of my functional strength the overwhelming pain is all but gone. Eventually the surgeon performed a procedure called reefing of the radio lunate ligaments,I was of work for 3 months but I`ve never looked back.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By dr. jung on Thursday, August 16, 2001 - 10:09 am:

Call up the local chiropractic school, and ask the book of adjusting extremities. It takes 5 seconds to pop the lunate bone back in place.

Have the practitioner place his thumbs over the back of the hands where it joins the wrist, and snap the thumbs down. That's it! Then do forearm exercises to stabilize.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Ikke on Thursday, August 16, 2001 - 02:36 pm:

Sorry, dr. Jung...Not in a hypermobile individual... not always at least. My particular lunate bone was out for some 4 years. Several specialist have put it back but anything resembling movement would pop it right out again. I had some splints with metal strips in them, which would solve practical problems but not the dislocated lunate bone. Finally I got a splint that doesn't allow any movement of my wrist or thumb. like a plaster, sort of. I got them to solve my increasing practical problems but after wearing them for a few months I found out my lunate bone doesn't come out anymore. I wear my splints whenever I go out or do stuff with my hands now. But I take them off when my wrists are not at risk, to keep the muscles somewhat activated.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Sharon on Thursday, August 16, 2001 - 04:28 pm:

Dr. Jung,
Like Ikke if I went to a chiropractor everytime I subluxed or dislocated my wrists I would have to take up permanent residence at the clinic, usdually when it is put back in it goes straight back out next time I move my hands or wrists, I can now put them back in by my self and this helps, I also use braces to help with this.
It is a general problem for hypermobiles that whenever a subluxed joint etc is put back in it never holds the adjustment and just goes back out. I personally have had a dislocated Pelvis (the whole right side of my pelvis has dropped) since i was 12 years old, and I am 30 now, this dislocated pelvis is now normal for me and could not be put back in even if I wanted it to be as it would require surgery now to make it stay there.
Hope this helps to explain what it is like for us and that so called "normal" measures don't always work for us.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Lin on Thursday, August 16, 2001 - 08:06 pm:

i hate chiros, i havent met a chiro i have liked yet. not to say i wont some day, but every chiro i have met has told me that i shouldnt fix subluxations myself that i need to see a chiro everytime, and that manipulation would cure me. AND then the guy had the nerve to tell me i was stupid and ignorant for telling him i also would have to take up residence in at the chiros office, like mentioned above. the guy didnt understand adding mobility to hypermobile individuals is BAD. so i havent met a chiro i have liked yet. I play oboe, and occasionaly clairinet. i played oboe for the past 3 years and started clairinet up again recently (played it for 3 years before oboe) and my joints are much worse now then they were when i played before, and i have found my wrists sublux ALL the time from the added weight of the clairnet compared to the oboe. its very painful and i play at school (i am 16) and i have to stop playing in the middle of class to manipulate and fix my wrists. once at the end of class i dropped my instrument class and cried out in pain (got some strange looks from that) because my radius had actualy moved out of place and was sticking up a bit, was extremely painful and took a bit to relocate it. well, this is long enough by now i think!
Lin

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Gerald A on Friday, May 02, 2003 - 10:19 am:

I cannot believe I found so much information on Keinbock's.For a while there I felt as if I was the only one in the world who had this disease.It has been two weeks since my surgery.My radius has been shortened by 3 mm in hopes to relieve some pressure on my blood starved lunate.Within a year I hope to hear something positive about my left wrist.


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