Not diagnosed with anything, but here's my history.
Hypermobility Forum for people with Marfan, EDS: SYMPTOMS: Not diagnosed with anything, but here's my history.
Top of pagePrevious messageNext messageBottom of pageLink to this message   By Kristi on Sunday, February 16, 2003 - 01:04 pm:

When I was a kid I always had "bad" ankles, though I can't pinpoint any specific injury to them. I started dance classes when I was 8 and my knees started giving me problems. I sprained both wrists multiple times. When I was 16 I dislocated my neck by simply swinging my waist lenghth hair out of my face. I severed my acl in my right knee when I was 19. This is when the orthopedist told me that I was "double-jointed", all of my joints are hypermobile. I was in a car wreck at 18 that gave me whiplash. When I was 20 I broke my arm and dislocated my thumb from a relativly minor fall. By this time in my life I was having pain all over my body (in my joints, not all at one time, just different ones at differnet times). age 20, bulging disk in my neck.
24 diagnosed with worn and thin cartlidge under my left knee cap. 25, herniated disk in my neck. 25, diagnosed with falling arches in my feet and the start of osteoarthritis. age 28 (just this past october) dislocated my left shoulder.
Should I be seeking a cause of all of this, is there anything that can be done? Or do I just live with this?

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Kristi on Sunday, February 16, 2003 - 01:11 pm:

Oh, I forgot, I do bruise easily, always have, but everyone has always thought it was from taking steroids off and on through the years for my asthma.
As far as velvety or streachy skin? I don't know what that means....I have very soft skin, very fair skin.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By az on Sunday, February 16, 2003 - 08:05 pm:

Hi Kristi sounds to me if you took all your symptoms to a rheumatologist he would diagnosed HMS, as it is you have already been given this diagnosis by been told you are double jointed, this is the laymans term for hypermobility.
Try this link for the EDS site it is very informative http://www.ednf.org/looseconnections.php
It will explain all the types of Elher Danlos and the symptoms of each type. Although there isnt a cure and we do have to learn ways to live with it you really need to get a proper diagnosis and help like physiotherapy. Good luck
Az

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