By Lin on Thursday, July 04, 2002 - 09:35 pm:

Hi, has anyone with EDS ever had this? Its suspected in me, in a short period of time after i finaly get some x rays done i will know for sure... I have been having hip pain, severe.. started with stiffness on the outside of my hip from walking or exercise, and improved when i rested. it moved to severe excruciating pain in my groin area, and severe stiffness that relieved with an extremely painful poping sensation. A few times, it got so painful in my groin that while horseback riding i was unable to use my left leg at all, any movement, or trying to use my muscles on the horse resulted in unbearable pain, and weakness. Ok, i must mention SCFE is an adolescent disease, which is one thing that makes me curious. It usualy happens in girls from 10-13, but can happen to the age of 18. I am 17, and I was thinking the EDS may explain why I could get this at my age or something... But this fits my symptoms, and was the first thing that came to 2 different doctors minds when i described everything... ok, i will stop since this is long enough already.
Lin

By Sharon on Thursday, July 04, 2002 - 11:22 pm:

I was suspected of having this too Lin when I was 12 but it turned out to be Juvinnile rheumatoid athritis (Still's disease),muscle torn off bone around hip and pelvis, and a dislocated pelvis (which I only found out about recently, I am 31 now and was never fixed or relocated)and suspected (weel pretty sure) Perthe's disease (or reossifying femoral head, inother word the bone at the top of my femur lost bone density (necratised) and then regrew) I wasn't told about this either. I did mine doing the splits in ballet while practicing for a concert at home and not having warmed up correctly or fully! (I didn't know I was hypermobile etc then (only found aout about HMS/EDS3 last august). I went through a lot of problems including years of crutches and physio and months in hopsital and years under many doctors. I can understand what you are going through but judst don't count you chickens before they hatch it may not (and hopefully for you isn't SCFE)

By Lin on Wednesday, July 10, 2002 - 10:36 pm:

Thanks Sharon, hopefully its not SCFE! Does anyone find my symptoms familiar? I realy want to figure out what it is... The problems keep adding up.
Lin