By Maggie Yeaman on Thursday, November 22, 2001 - 04:11 pm:

Hi all,

Im new here. My rheumatologis thinks I have Ehlers Danlos syndrome. My hip subluxes. I walk with crutches. I am very hypermobile in most joints. My skin is sensitive.

I also have many Marfan features such as Rib cage deformity, Long fingers, toes and arm span. Long legs, underweight. Acaetabula dysplasia. I am however only 5" 4 inches tall. I have problems with my eyes. The right eye converges in if I look up or to the sides, this causes double vision. I am awaiting an appointment with a professor in Leeds. I have however been told that he has a YEARS waiting list !!!

Is there anyone out there like me ??
Maggie.

By Maggie yeaman on Thursday, November 22, 2001 - 04:16 pm:

I should add,

I also have high arched feet and hammer toes {which have been straightend twice}, and mild scoliosis.
Maggie.