By Sheena on Friday, June 01, 2001 - 01:57 pm:

I have Campbell de Morgan spots - very tiny, permanent, bright red spots anywhere on my body. I first noticed them in my teens, and the number has been slowly increasing ever since. Does anyone else have them? I read the other day they are supposed to be due to a collagen problem in capilliaries.

By MichelleT on Friday, June 01, 2001 - 03:47 pm:

I have them, and didn't know what they were called.

By Mickey on Friday, June 01, 2001 - 05:30 pm:

Hiya Sheena,
I have hms/eds III, and also have these spots. I have been informed that they are due to the hms and are completely harmless. I hope that this helps.
Mickey

By Gwen on Friday, June 01, 2001 - 06:39 pm:

Hey, this is really interesting. They run in our
family . My Mum, aunts and myself all have them
but we have never had it suggested that they are
linked to hypermobility. Mum and I are both
hypermobile. One auntie died before I was
diagnosed so I don't know about her and the other
is stiff with arthritis so don't know about her
either but they were both musically talented and
good dancers so may have been hypermobile.
It seems there is so much that isn't acknowledged
about EDS/HMS.
By the way, has anyone seen the articles on
hypermobility in the May issue of "Rheumatology"?
One is by Prof. Grahame and there are two by
other authors.

By Iggie on Saturday, June 02, 2001 - 06:34 am:

Gwen,

How could we get copies of the articles?

Iggie

By vicky in england on Saturday, June 02, 2001 - 02:21 pm:

Wooo, spooky, I have those spots too. Why does the stuff we get always have such silly names!

By Mei on Saturday, June 02, 2001 - 04:36 pm:

got them, are they related to HMS/EDS too? I'll ask my geneticist when I go there next july...

By Gwen on Saturday, June 02, 2001 - 10:09 pm:

Re the articles. I suggest you either write to
Oxford University Press who are the publishers or
try to access a copy of the magazine through local
medical library or friendly rheumatologist. I am
going to see if I can get it from the medical
school.

By Sheena on Monday, June 04, 2001 - 02:49 pm:

You can see an abstract of the article at http://rheumatology.oupjournals.org/cgi/content/abstract/40/5/559

(paste the URL all on one line)

By Bridget on Monday, June 04, 2001 - 07:41 pm:

My husband is 42, severe EDS/HMS, and has quite a collection of those red spots. We love reading this Board, it's good to know others have so many of the same symptoms. He feels like such an oddity a lot of the time. :(

Bridget, Tucson

By Sheena on Tuesday, June 05, 2001 - 02:21 pm:

Gwen and Iggie,
I have asked in my local public library for copies of the editorials in Rheumatology on the subject of Hypermobility. The librarian thinks he should be able to get hold of them (but they may not be free. I said I was willing to pay if necessary).

By vicki on Tuesday, June 05, 2001 - 09:50 pm:

Sheena,
it's very interesting to read about these spots. My daughter was diagnosed with hms. We noticed the red spots on her elbows they looked like she was resting her elbows on her desk but they never went away. Her family doctor didn't know what to think of them and her rheumatologist has never mentioned them but I'm going to make it a point to ask about them and see what kind of insight she can give me. I can't believe we never connected them with the hms. how interesting so many hms patients have them. write back.
vicki

By Nikki on Wednesday, June 06, 2001 - 09:59 pm:

Could Campbell De Morgan spots also be referred to as "petechial rash or petechial haemmorhage"? My lower legs were covered in these spots a year or two ago for about a week, then disappeared. But I do have other permanent ones also, just spread out more and less noticeable. I suspect that I have EDS3.

By Mei on Thursday, June 07, 2001 - 02:19 am:

About the articles...
Actually there are 4 of them, all in the may issue of rheumatology. And they can be viewed on line! That is, untill they put the june issue on there, so hurry. They can be found on the Oxford university press website, www.oup.com
go to journals, go to rheumatology and there it is!

By Mei on Thursday, June 07, 2001 - 02:21 am:

looked it up the URL is
http://rheumatology.oupjournals.org/

By Sheena on Thursday, June 07, 2001 - 10:14 am:

Mei
Have you actually viewed the articles? Don't you have to pay for a subscription to the journal?

By Tanya on Thursday, June 07, 2001 - 04:29 pm:

I have seen at least 2 red spots on my
chest/abdomen area. Are they flat or raised?
Mine look like a dot mark from a red ink pen or
little red moles. They are not flat. The first
time I saw them I thought "red hives?".
The more I check this site the moreprepared I
feel for my visit with the rheumatologist on
6/26. I'm going in there to be in full control.
I'm tired of being sick. It's getting harder to go
to work. I was driving yesterday and my leg
went into spasms- scary!! I think i'm also
having trouble with my mitral valve- my mitral
valve prolapse symtops seem to be getting
worse - dizziness, shortness of breath and the
chest pains during activity.

By Eppie on Thursday, June 07, 2001 - 06:43 pm:

Looks like you have to have a subscription to view the articles...they look interesting though.

By Sheena on Friday, June 08, 2001 - 02:59 am:

Tanya,
My very, very, tiny red spots could be flat. The larger (but still tiny) ones are mostly sort of domed and shiny. They are not perfectly round.
Nikki,
None of mine have disappeared, except that I think I remember picking on off my finger when I was a child (! as you do) and it never came back.

By Tanya on Friday, June 08, 2001 - 09:28 am:

nikki,

Domed and shiny is a better description.

By Nicole on Friday, June 08, 2001 - 08:02 pm:

what exactly are these spots? i have recently noticed that below my neck, like across where my collar bones are, some small red spots, they look like little red moles. and they are sometimes itchy, i thought it was an allergic reaction or something, but they dont go away. and i read above someone mentioned thinking they were hives...

By Sheena on Friday, July 06, 2001 - 02:13 pm:

Re the articles in Rheumatology - I got hold of the 3 editorials by asking my local library to get them for me from the British Library Document Supply Centre. They supply photocopies. You have to sign a copyright declaration saying that they are for your own use only, so I can't reproduce them for everyone to read.

By Julie Campbell on Sunday, December 16, 2001 - 12:12 pm:

Re spots. I have many of these over my chest, abdomen and back, and they look like little blood spots. I have only had these since my HMS has become more of a problem. Could these be related to HMS or coincidence?

By Jayne on Tuesday, April 06, 2004 - 12:45 am:

I get these too. Here is a short article about Campbell de Morgan spots (although it doesn't mention HMS/EDS). It says that they are "small, benign overgrowths of blood vessels in the skin", and that they normally occur after the age of 40. Maybe the fact that many of us have them at a younger age is a feature of HMS and maybe we are more likely to get them due to the different make-up of our tissues.

http://www.bbc.co.uk/health/ask_doctor/campbellmorgan_spots.shtml

By Jimmy on Saturday, August 28, 2004 - 04:21 pm:

Looks like this thread isn't very active anymore, but anyway.... here is a paper about a condition called "CAEMH-a" The interesting thing about it is that it looks like it affects only those that have Campbell de Morgan Spots. I have these spots too and just started researching them and I ran across it.

http://www.cardiab.com/content/3/1/1/comments

By Emma on Thursday, December 02, 2004 - 09:15 am:

Hey, i havent ever noticed these red spots before... i have a couple of red lil fings like tht on my stomach but i assumed they wer just... there. i came on here for a different reason tho... anyone know where i can the special pens for writing? i have very bad pains in my fingers and wrists at the mo and am currently doing my mocks. anyone know a gd site on the internet for them?