By Abigail on Monday, June 05, 2000 - 03:32 pm:

Anybody else:
1) Tired a lot?
2) Have more pain when tired?
3) Get back & neck pain with normal beds and pillows?

Any advice?

By Angie on Monday, June 05, 2000 - 03:33 pm:

I find using a cervical pillow works for me. A cervical pillow has a hump or "wave" that supports the neck, and has a shallow dip in the middle of the pillow where
the head lies.

By Bianca on Monday, June 05, 2000 - 03:33 pm:

1) I am tired a lot since I have pain. Before I needed maybe 6 hours of sleep. Now I need 7 to 8. And after half a day of work (phsically) or also when I go away (
a town 120 kilometers away) like yesterday to a half day meeting, where I only had to sit and speak I feel exhausted afterwards and need some sleep on the noon
too.
2) I have always more pain in the evening, but especially when I am really tired. Also when I had a bad or short sleep the night before.

By Angie on Monday, June 05, 2000 - 03:33 pm:

Dang! I'm jealous. I've always needed 10 hrs of sleep at least. Oh, what I could do if I only needed 7 or 8...

By Beth on Monday, June 05, 2000 - 03:34 pm:

Ditto here, I need at least 10. and then sometimes I still need a nap!

Hugs beth

By Gwen on Monday, June 05, 2000 - 03:34 pm:

As far as beds go it seems to be a matter of traial and error. There was a discussion on this a while ago. I find a soft sided water bed the most comfortable. Others
seem to prefer supportive, orthopaedic beds. It's a pity beds don't come with a mnth's free trial. As far as pillows go, I have found that a buckwheat husk pillow is
the best thing going. They are available from mail order companies (usually at inflated prices) but I got mine at a local chain store for 1/3 the price. Since I have used
it my visits to the physio for neck adjustments have decreased from approxiamtely a course every mnth to twice in the last year. I call that effective!!

By Barbara on Sunday, January 14, 2001 - 06:30 pm:

The second issue of EDS Today featured an article on a recent study linking Ehlers Danlos Syndrome and Chronic Fatigue Synrome. For more information write to edstoday@uggen.net or visit their web-site at http://www.uggen.net/edstoday/

By Ralyn on Saturday, January 20, 2001 - 03:36 pm:

I came to this site to find out some information about what my boyfriends doctor told him. He said he has congenital lax joints. It seems that it is called something diffrent at this site but the symptoms that my boyfiend has are a lot like I am reading about. I need some more information and some ideas on how to help him deal with the pain and maybe gain some strength. I would also like to know if this is genetic. Please help email me with suggestions. Thank you

By Bianca on Sunday, January 21, 2001 - 02:06 am:

I think that your boyfriend has HMS. In German the official name of HMS is "Hyperlaxitätssyndrom", so hyperlaxity is another name.
You can train your joints to some hyperlaxity, but when you did not stretch them in an extensive way and they are hyperlaxe it is genetic. This site is a good start to learn what can help your boyfriend.