By Patty on Wednesday, October 18, 2000 - 03:39 am:

I started getting deep tissue massage about six weeks ago. Incredible results. Has anyone else gone this route? They start with my feet and work up to the head. My therapist spends special time around the SI joint where I have the biggest problem. While I still limp with some pain in my left hip, I haven't HAD to sit in the middle of the grocery store or at the mall. I teach and I have actually been able to teach for 1 1/2 hours and ease with dignity into the chair instead of falling into it. I'd love to hear whether anyone else has found this helpful or not. (One funny was when a trainee was working on my legs without a clue that I have EDS. "It's like making cinnamon rolls!" The therapist and I about split our guts.)

By Barb on Wednesday, November 21, 2001 - 01:36 pm:

I have actually been doing Deep Tissue Massage and Myofacial Release. My father is a massage therapy student so he started working on me for a report he had to do in class. Over the 6 weeks of treatment, we noticed amazing results! Not only did it help the back pain, it also corrected some of my postural distortions that I have had for decades!

Massage therapy should be performed by someone who REALLY knows what they are doing. There are some people out there with limited skills that have licenses. Done incorrectly, there are techniques that can hurt people with EDS. However, if you find a good LMP, the results can be heavenly!

By Linda on Tuesday, February 12, 2002 - 05:36 pm:

Hey Everone!!!!! I was on narcotics and unable to feed myself or walk or even lay down to sleep an I Tried Hypnotherapy for pain but the woman told me she could actually heal me. Guess what? I have healed in record time!!! My pain is virtually gone. My family neighbors think a miracle happened. I now realize the imporance of being relaxed for your joints to heal. I have been visualizing my joints healing and I am basically stunned with the results. as i was not a believer!!!!!
Feel free to email me with any questions.