Bad news... Needed to talk to those that understand...

Hypermobility Forum for people with Marfan, EDS: Dealing with employers: Bad news... Needed to talk to those that understand...
Top of pagePrevious messageNext messageBottom of pageLink to this message   By Beth on Saturday, September 09, 2000 - 03:54 pm:

I went to a Vocational Rehab doc last Wednesday and I asked him what I could do at a job. I knew that that list would be shorter. Anyway, he said that I could aswer phones and do paper filed. NO repititious work because of the Carple/cubital tunnel history in my left hand and present condition in my right hand. I was told at the time of my initial surgery that it was structural.


I need to get SSDI to listen to him. Most of those jobs include computors and those are out for me.

Hugs Beth

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Nick on Tuesday, September 12, 2000 - 02:20 am:

Beth,
Could you do a computer job if you used voice activated software? The employer might be able to get a grant to pay for it?

Just an idea.
Love Nick

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Beth on Tuesday, September 12, 2000 - 08:18 am:

Nick, Thanks for the reply. I don't know if Voice activated software could work. I hope that Vocational rehab will be able to help there.

Hugs Beth

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Kathie on Saturday, September 16, 2000 - 02:56 pm:

Are you in the UK? If so you can get your potential workplace assessed under the 'access to work scheme' and the government will pay for any modifications you need to enable you to work... You need to speak to your disability employment advisor at your nearest job centre.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Beth on Saturday, September 16, 2000 - 06:59 pm:

Nope, I am in the Backward US. It is hard to get anything here. If VocRehab doesn't work then I can't. At least not without consiquences.(sp)

Hugs Beth

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Desert Flower on Tuesday, February 06, 2001 - 10:22 pm:

I work as a computer operator where there is only work 6 months out of the year. The other six I get to rest my hands. I don't love what I am doing but that may be a solution for you. Good Luck and my sympathies.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Danielle on Tuesday, February 20, 2001 - 04:31 am:

I use a computer most of the day but haven't suffered from carpal tunnel syndrome- rather I have suffered shoulder spasms and tendonitis in my shoulder. I didn't know that I had HMS at the time but found that switching to a touch pad instead of a mouse helped, as did using a keyboard tray, and getting a better chair. In any case, you might not want to completely rule out use of a computer provided you take these special measures.

The shoulder pains still come and go, but lately, my problem is unconsciously cradling the phone against my shoulder causing severe neck pain. I need to get a headset which I hope my (new) temp job will buy for me- it costs $200!

Anyway, good luck

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Joseph Renken on Saturday, June 16, 2001 - 04:58 pm:

I work as a custodian for the post office and have been accused of paying off my doctors to make up this condition. Nothing really helps except sitting down for long periods of time. I rotate my shoulders for cleaning windows, floors, mirrors, and toliets. Plus all the walking, standing, and bending of the job has taken its toll on my hips.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Carol Reese on Thursday, January 22, 2004 - 05:57 pm:

I have just been diagnosed with hypermobility syndrome,I also have osteoarthritis and have had both hands operated on for carpal tunnel syndrome.After reading some of your messages above am I right in assuming carpal tunnel goes hand in hand(excuse the pun) with hypermobility joint disorder?

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Michelle Castle on Saturday, January 24, 2004 - 09:58 pm:

Carol,

Plenty of people with HMS develop Carpal Tunnul, but others don't. I sometimes wish the problems with my hands were Carpal Tunnel - after having explained a bit about HMS and what its done to my hands, I can't count the number of times the response has been - "So, is that like that Carpal Tunnel thing?" LOL.

Michelle
hypermobility.blogspot.com


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