? Ehlrs Danlos syndrome can anyone relate?

Hypermobility Forum for people with Marfan, EDS: SYMPTOMS: ? Ehlrs Danlos syndrome can anyone relate?
Top of pagePrevious messageNext messageBottom of pageLink to this message   By Maggie Yeaman on Thursday, November 22, 2001 - 04:11 pm:

Hi all,

Im new here. My rheumatologis thinks I have Ehlers Danlos syndrome. My hip subluxes. I walk with crutches. I am very hypermobile in most joints. My skin is sensitive.

I also have many Marfan features such as Rib cage deformity, Long fingers, toes and arm span. Long legs, underweight. Acaetabula dysplasia. I am however only 5" 4 inches tall. I have problems with my eyes. The right eye converges in if I look up or to the sides, this causes double vision. I am awaiting an appointment with a professor in Leeds. I have however been told that he has a YEARS waiting list !!!

Is there anyone out there like me ??
Maggie.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Maggie yeaman on Thursday, November 22, 2001 - 04:16 pm:

I should add,

I also have high arched feet and hammer toes {which have been straightend twice}, and mild scoliosis.
Maggie.


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