Help needed

Hypermobility Forum for people with Marfan, EDS: SYMPTOMS: Help needed
Top of pagePrevious messageNext messageBottom of pageLink to this message   By anxious for pain relief on Wednesday, June 06, 2001 - 09:45 pm:

Hi:

I had a R.wrist injury a couple of years ago. Prior to that I had pain in my forearms for several years and still do. The muscles feel tighter than they have ever been.

The upper hand & limb doctor has diagnosed the injury as a scaphoid ligament problem. The problem was I had to wait 3 1/2 months for the consult when they then casted me. This may have contributed to the fact of continuing pain in the hand and tightness in the hand wrist and fingers- it comes and goes and sometimes bending the wrists both are painful and produce sensation changes. I have had lots of numbness in the hands usually at night but other episodes to where partially numb for a period of time. I am always dropping things. I had a difficult time returning to work and took months to work up from 2 hrs a day to 8. The upper hand and limb guy said when I had returned to work fulltime that it was better to go to work than to stay home and cry. I wanted to slap him because I expected at least a little "way to go" for getting back to it. Anyway the bonus info. I came away with when diagnosed and treated with that injury is that I have weak ligaments in the hands (positive Watson's sign) which the doctor says is a problem with congenital weakness of ligaments. Never had problems with the hands themselves only arms to the age of 45. I find this difficult to believe, I also find it difficult to believe that the Dr. told me typing will not damage the hands in any way and none of the problem is due to any repetitive type work. The only thing to do is to fuse the wrists if I want relief from the pain he has said. He has not done an arthroscope to confirm anything. I didn't pursue that because I am avoiding a wrist fusion and don't want further damage to my hands.

I guess my other past problems that have been ligament/tendon oriented are:

weak ankles probably noticed this about the age of 12, dislocation injury and sprain to the R one several times. Achilles Tendinitis when I was pregnant, both tendons at once.

Back injuries x 2 a lot of lifting in my prior job. The second was a complicated injury and they expect I will have some continuing pain. I had to retrain couldn't stay on my feet. No MRI was done to come to this diagnosis.

Fibromyalgia symptoms not diagnosed, my doctor didn't send me on to a rheumatologist when I asked thinking a lot of my pains may be a beginning of arthritis stating he thought I had no arthritic problems. I have been back to the Dr. several times and informed him I had taken massage therapy for the hand problems and painful other muscle problems for 9 mos. with little result, he gave me more muscle relaxant and sent me away.

I can only walk so far or do limited amt. of work before my muscles tighten and if I don't back off I end up in back pain for several days until something shifts and I get relief.

I am dismayed regarding the hand diagnosis I recieved. There has been some improvement to the hand and severity of the spasm and aching since I was diagnosed as hypothryoid but I still have very tight hard muscles, aching and stiffness, back legs arms shoulders. I have a lot of muscle twitch in some large muscle groups frequently lately and I have also had a lot of arm weakness. The leg weakness has improved since on thryoid.

Is it possible hypotonia re: ligaments has already been there and all I am experiencing could be attributable to this condition? Are there others with these problems?

Thanks for your help. How does one get a diagnosis to get better relief? What specialist, what tests? I am still trying to work a full time job with a commute every day and I would love some relief?

Thanks,

Top of pagePrevious messageNext messageBottom of pageLink to this message   By robert james newman on Wednesday, December 11, 2002 - 07:31 am:

our son is 12mo and he has tremmers about 30 to 40 a day and he has senative reflexes and he has tightness in hi legs and arm his brain is smaller than his skull


please email me back at

robert.newman@attbi.com


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